DANCING WITH MS Vol4. – Recent Encounters and Queries

Lately, we’ve been crossing paths occasionally, and somehow, you reach out to me through what I write. I am thrilled to be a source of light and morale for you, even if just a little. I wish I could answer all your questions, but let me remind you again: I am not a doctor. I’ve just been living with MS since 2013 and receiving treatment.

There are a few frequently asked questions that I want to answer briefly, meaning there are gaps I left in other writings.

Communication is important 🙂
Together, we are strong! Please don’t hesitate to ask. If I know, I will answer. If I don’t, we’ll learn together 🙂

Q: When were you diagnosed, and how long have you been on medication?
A: I was diagnosed with MS in 2013 and have been on medication since 2015. After trying various medications, I settled on one. For now, both my MS and blood values are going well with this medication. I am adapting to it. It’s a tedious process, but you must be patient to find the proper medication for you.

Q: Which hospital monitors your condition, and where is your doctor?
A: I receive my treatment at Cerrahpaşa Faculty of Medicine in Istanbul. I don’t want to advertise my doctor 🙂

Q: Did you have children? The last time we discussed children was in 2015.
A: No, we still haven’t had children. Our doctor hasn’t given us the green light yet, and frankly, we don’t feel psychologically or physically ready. Besides, is everyone obligated to have children? Life is beautiful this way, too.

Q: Do you have information about pregnancy and childbirth with MS?
A: I don’t know about pregnancy and the postpartum period with MS. However, I’ve heard stories of people who have given birth after MS but haven’t met them personally 🙂 If they did it and, most importantly, if your doctor says there’s no obstacle for you, maybe you should trust your doctor? I will publish research on the subject, so continue following this page.

Q: When do you not have attacks?
A: I don’t have MS attacks as long as I keep my immune system strong. Because the body doesn’t get sick. Even a minor flu can trigger an MS attack. That’s why we should take good care of ourselves, and maybe we need to be a bit like those “”health-conscious”” people we used to mock 🙂 I find and apply wonderful practical recipes. You can find recipes on the page, from plain vegetables to those that can suit different tastes.

Q: Person X did this and no longer has MS or drank this, and it helped a lot; what do you say?
A: If there were “miracle cures,” I believe our doctors wouldn’t drag us through so much medication. I don’t think so and don’t want to believe that the medical world operates on deceit, especially with rare illnesses like ours. If someone has miraculously recovered, that’s great; they’ve found their cure. Since you’re asking me, unless your doctor advises otherwise, I suggest you not risk your health by trying the same so-called miraculous treatment.

Q: How are you being treated? What’s the name of your medication?
A: When injections were not enough for my MS, I switched to pill treatment. When those didn’t calm the attacks, I went back to another type of injection therapy. If your doctor suggests injections, you should accept them. Maybe your attacks will stop without needing pills. There are various medications and names, so I don’t recommend specific drugs. Still, you can find all the medication lists in the research section on this page. But I think you should listen to what your doctor says.

Q: When was your last attack?
A: It’s been about a year since I had a new attack. I think the medication is 50% effective. The other 50% is due to my diet and regular lifestyle, which I observe in myself.

In conclusion, I see that what we need is just a bit of morale…

There are so many negative influences and misinformation online that it can be overwhelming, right?
We all go through tough times, but we must accept that we are not the only ones with MS in the world. 🙂

The only thing we can do is make the most of our current moments, enjoy them to the fullest, and be grateful.
How?
I repeat, with lots of morale 🙂
I hope that soon, the complete cure for MS will be found, and these writings will remain as memories.

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2 thoughts on “DANCING WITH MS Vol4. – Recent Encounters and Queries

  1. Another thing I have noticed is the fact for many people, below-average credit is the response to circumstances above their control. As an example they may have already been saddled with an illness so they have large bills for collections. It would be due to a employment loss or the inability to do the job. Sometimes breakup can really send the financial circumstances in the undesired direction. Thanks sharing your ideas on this weblog.

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