My MS Journey: 13 is My Lucky Number

As Awareness Month begins, I wanted to reflect on how my life has changed throughout my MS journey, and this piece emerged. This condition hasn’t just brought challenges—it has also taught me invaluable lessons. It has helped me live more consciously, with greater awareness, and as a more authentic version of myself.

1. Accepting Myself as I Am

Before my diagnosis, I was just me. Then, suddenly, it felt like someone had placed a label on my forehead: MS patient. But the truth is, I didn’t change. My dreams and identity didn’t suddenly disappear. It took time to accept and internalize this, but I realized that MS is just one detail about me. I am not defined by MS—I am still me.

MS is not a label that defines you; it’s simply a part of your life. Accepting this reality, embracing yourself, and moving forward is the biggest step. MS has taught me to love myself fully, to embrace both my strengths and vulnerabilities.

I am no longer just surviving—I am living fully.

A wild daisy growing through a crack in the sidewalk, bathed in warm sunlight. A symbol of resilience, strength, and hope.
Even in the toughest conditions, growth is possible. This wild daisy breaking through concrete is a reminder of strength and perseverance.

2. Understanding the Importance of Rest in my journey

This is a lesson I’ve had to learn over the years—and one I still remind myself of. Stopping to rest when I’m tired, taking a coffee break, or even allowing myself a short nap in the middle of the day—these aren’t acts of laziness, but of self-compassion.

Resting is a way to make peace with your body. Taking breaks when needed, without pushing yourself to exhaustion, helps preserve energy and feel better. I’ve learned to listen to my body and recognize what it’s trying to tell me. Understanding that rest is not a luxury but a necessity has improved my quality of life.

3. Recognizing My Limits

I used to stay up all night chatting over coffee, never going to bed before finishing my work. But now? My energy is limited, and I have to be mindful of how I use it. Accepting this has allowed me to manage my life more consciously.

Knowing my limits has empowered me. When I understand in this journey where to invest my energy, I can prioritize what truly matters. Learning to say no is a way of staying true to myself. Recognizing when to step back without guilt has given me a sense of freedom.

Instead of thinking I have to do this, I now ask myself, Is this right for me?

4. Learning to Be Strong During Tough Times

Some days, I don’t feel great. This journey has ups and downs, like many journies… Sometimes, the MS fog rolls in, and I find myself in a completely different reality. But even in those moments, I’ve found ways to lift myself back up. Difficult times reveal how strong we truly are.

Strength isn’t just physical; it requires mental resilience, too. Believing in yourself, saying This too shall pass, and not giving in to negativity are some of the most important lessons I’ve learned. Strength doesn’t mean always standing tall—it also means knowing when to rest, when to ask for support, and when to be gentle with yourself.

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5. The Power of Asking for Help

Saying I’m fine is easy. But when you truly need support, asking for it can be difficult. I’ve learned that people are more willing to help than we might think. Accepting support from my loved ones is not a sign of weakness—it’s a way of accepting their love.

Realizing that true strength sometimes means allowing others to help is incredibly freeing. Asking for help doesn’t make you weak—on the contrary, sharing the burden makes the journey easier. MS has shown me how valuable relationships are and that trusting my loved ones makes everything more manageable.

6. Listening to My Body and Mind in this Journey

I used to be lost in the noise—rushing from one task to the next, drowning in responsibilities. But MS has taught me to tune in to my own body. How do I feel today? What do I need? Aligning my actions with these answers has brought me peace of mind.

Listening to your body is one of the greatest acts of self-care. Recognizing when your mind and body need a break is an act of self-respect. Instead of blaming myself, I now work with my body.

Sometimes, slowing down is the best way to move forward.

7. Practicing Patience

Not everything gets better overnight in this journey. Sometimes, an MS flare-up takes weeks to recover from. I used to pressure myself to get better now, but I’ve learned that patience and allowing myself time to heal are some of the best medicines.

Patience isn’t just about waiting—it’s about creating space for yourself and accepting the process with kindness. Giving yourself time is an essential part of healing. MS has taught me that not everything in life has to be solved immediately. Sometimes, time itself is the best remedy. Accepting the process and treating myself with compassion has been one of the most valuable lessons I’ve learned.

8. Letting Go of Others’ Judgments

I can’t count the number of times I’ve heard, You think about your health too much. But the truth is, no one else lives in my body. No one understands my fatigue, dizziness, or memory lapses better than I do. So I’ve stopped worrying about what others think and started focusing on how I feel.

People’s opinions can sometimes be hurtful, but I live my own reality. MS has taught me to prioritize my body and needs over others’ expectations. Listening to myself is one of the greatest freedoms.

9. Finding Joy in the Small Things

I don’t need grand moments to feel happiness. The scent of my morning coffee, fresh air from an open window, a favorite book, or simply gazing at the sky from my balcony—MS has helped me appreciate these small but meaningful moments.

I used to wait for big things to make me happy. Now, I see that joy is often hidden in the simplest moments—a cat purring, the sound of rain, or a beloved melody playing in the background. These small joys are what make life truly meaningful.

You can find more in Dancing With MS
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10. Understanding the Importance of Nutrition and Movement

Before MS, eating healthy seemed like a good idea. Now, it’s a necessity—but that’s not a bad thing. Seeing how my body responds to my choices, making healthier decisions, and feeling better overall has improved my life.

Healthy eating isn’t just about following a diet; it’s an act of self-respect. The same goes for movement. A gentle stretch, a short walk, or breathing exercises can completely change my day. Moving isn’t an obligation—it’s a gift I give myself.

A steaming cup of coffee next to an open book on a windowsill, with sunlight streaming through. A cozy and peaceful moment symbolizing the beauty of small joys in life.
A warm cup of coffee, an open book, and a sunlit window—the perfect recipe for appreciating life’s little moments.

11. The Importance of Hobbies and Personal Time

Writing, drawing, playing games, going for walks, or simply sipping coffee in silence—these moments add color to my world. I’ve learned that creating space for myself amidst responsibilities is essential. Hobbies have become a form of therapy for my mental and emotional well-being.

When I neglect my hobbies, life feels incomplete. So now, I make it a priority to have at least one personal moment every day. Sometimes, all we need to be happy is a little time for ourselves.

12. Embracing Life’s Uncertainty

None of us know what the future holds. MS is just a reminder that life doesn’t always go as planned. But that doesn’t have to be scary—it can be an opportunity to live in the moment.

Instead of resisting uncertainty, I’ve learned to accept it and keep moving forward. When life doesn’t go according to plan, I don’t get stuck—I explore new paths. Change can be intimidating, but it also offers a chance to grow.

Even when I can’t control life, I can always control how I respond to it.

13. Discovering the Power of Laughter and Humor

MS creates some truly ridiculous moments—dropping things for no reason, suddenly freezing mid-walk, or telling the same story twice because of brain fog. But instead of getting frustrated, I’ve learned to laugh. Because humor makes everything feel lighter.

Laughing doesn’t change my reality, but it changes how I experience it. Instead of getting angry at myself, I choose to find the humor in these situations. In all of life’s absurdities, laughter gives me strength. It’s a powerful defense mechanism—one that helps me see life through a more positive lens. 😊

My MS Journey has not only taught me about my limits—it has also shown me where true freedom lies. And now, I choose to live with that awareness.

Did this resonate with you? Do you know someone who could benefit from these insights?

Share this journey with others—whether they have MS or not, these lessons can inspire anyone to live with greater awareness, self-compassion, and joy. Let’s spread knowledge, encouragement, and support together!

Tag a friend who might relate, or share your own experiences in the comments. Let’s keep the conversation going!

Pirden

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